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Spastic Paraplegia Foundation
http://www.sp-foundation.org
The Spastic Paraplegia Foundation was created to fund research to discover the cures for primary lateral sclerosis (PLS) and hereditary spastic paraplegia (HSP). In addition, we provide information and conferences about the disorders to patients, their caregivers, physicians, and the general public. We also provide support to patients and their families.Our goal is the day when all individuals with PLS or HSP are diagnosed, treated and cured. To learn more about the Spastic Paraplegia Foundation, please visit our web site at http://www.sp-foundation.org,
send us an email at info@sp-foundation.org
call us at (703) 495-9261, or write to us at
SP Foundation
7700 Leesburg Pike, Suite 123
Falls Church, VA 22043.
Address for donations:
SP Foundation
P.O. Box 1208
Fortson, GA, 31808
HSP-PLS
TeamWalk - raises $150,000!
TeamWalk is the annual fund raising event for the SP Foundation which supports research for both PLS and HSP neurological diseases. This year the TeamWalk
was held in Massachusetts.
Visit the Current Issue section of Synapse for a complete wrap-up
of the event including pictures...
ALS Therapy Development Foundation
http://www.als-tdf.org
ALS Therapy Development Foundation uses entrepreneurial spirit and techniques to aggressively seek out, develop, and deliver promising therapies to slow, arrest, and cure ALS. We do this by identifying and filling gaps in the development process and defining and delivering the resources required to transform ideas into concrete therapies available to patients today.
Address for donations:
ALS Therapy Development Foundation
44 Glen Ave.
Newton, MA 02459
Or If you would like to donate by credit card, please call us at 617-796-8826
Project ALS
http://www.projectals.org
Since its inception, Project A.L.S. has been at the forefront of scientific research into finding treatments and a cure for ALS. Too often medical research is hindered by a lack of cooperation on the part of scientists who are forced to compete for critical funding. Project A.L.S. has broken this mold by bringing together a team of doctors from some of the most distinguished medical institutions in the world. These doctors and scientists are provided with the financial support to pursue their work in the most expeditious and efficient manner possible with the understanding that they share their findings and data with each other so that every possible path can be pursued until a cure is found. By fostering a spirit of cooperation, and by applying corporate expectations and timetables to the results, Project A.L.S. has established a new model for the funding and execution of medical research — one that has already produced remarkable results.
Address for donations:
Project ALS
511 Avenue of the Americas
PMB #341
New York, NY 10011
Neurogenetics Disorder Clinic, University of Michigan
Dr. Fink's laboratory has the largest PLS clinic in country. He is a top researcher of PLS and received one of the PLS grants for his study "Molecular Basis of Primary Lateral Sclerosis: Search for Alsin Binding Factors", which studies the relationship between the proteins responsible for juvenile PLS and hereditary spastic paraplegias (HSP).
Address for donations:
HSP/PLS Research
In care of: Ms. Lynette Girbach
Department of Neurology
University of Michigan
1500 East Medical Center Drive
5214 CCGCB
Ann Arbor, Michigan 48109 - 0940
SP Shopping Mall
It’s so easy to Shop Smart. . . now through the SP Foundation Website -
http://www.sp-foundation.org/shopping.htm This link takes you directly
to the SP Shopping Mall. Once there, just click the icon of the vendor you
need. Remember by shopping through this site you are not paying one cent
more than you would if you went directly to the vendor and you are earning
an average 5% contribution to PLS and HSP research.
Some of you may never have tried on-line shopping. Some of you might have
a concern about putting your credit card number into your computer and
transmitting an order this way. These vendors have secure sites. You have
greater privacy through a secure on-line site than with your cordless phone!
Some vendors, such as Amazon.com have links to many other vendors with a
huge array of types of products. Even if you don’t want to buy something
today, browse through the possibilities
- you’ll find no clerks so busy talking to their friends about their
social life that they cannot wait on you!
- those of you with bulbar involvement will find that no one has a
problem understanding you!
- you’ll find reliable facts about the inventory available
- you’ll be able to find items you are looking for
- you’ll find it so easy to have packages delivered to your door instead
of struggling to haul packages home
If more of us get in the habit of thinking Shop Smart whenever we need
just about anything – books, gifts, vitamins, equipment, etc. just think of
how much money we can raise . . . for us! You just have to remember to think
Shop Smart first!
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